As part of World Rare Disease Day 2009, a video began circulating on YouTube that was developed by a rare disease parent advocate. The video showed the natural connection between jeans and genes.
Using that video as inspiration, a group of individuals and rare disease organizations decided to take this connection to the next level by creating the Global Genes Project, a grassroots effort to use jeans to raise awareness for rare genetic disorders.
This group has grown and continues to add individuals and organizations that want to be involved. Our hope is that the rare disease community as a whole will view this initiative as an opportunity to build unity around this important cause. Creating a platform for collaboration, while building awareness, educating and engaging support from the general public.
Consider joining today! Think about how your organization can show it’s support. Contact us at firstname.lastname@example.org or 949.248.RARE.