EDS awareness LWS

My name is Karise Sewell and I'm 16. I suffer with a rare, incurable condition called Ehlers-Danlos Syndrome. I devote my life to raising awareness and helping other sufferers find answers and treatment as quickly and easily as possible. Ehlers-Danlos Syndrome is a heritable disorder of connective tissues.There are several types of Ehlers-Danlos, some so rare there are only ten diagnosed cases in the world. The faulty genes cause the body to produce weak collagen. Collagen is a protein in connective tissue that acts as a "glue" in the body, adding strength and elasticity. When this becomes weak, it causes severe and debilitating chronic pain, daily dislocations/subluxations, and can cause conditions such as dysautonomia, gastroparesis, chiari malformation and more. Please help to support EDS awareness! www.livingwithstripes.co.uk